Things dermatomyositis has made hard

This has been absolutely excruciating. I know there are more painful autoimmune disorders out there (this has not been painful at all really) but it's really impossible to convey just how awful it is to experience your body getting weaker and weaker, your muscles smaller and smaller, and your capabilities less and less, and be …

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What does dermatomyositis feel like?

Horrible. It started pretty simply, I felt physically tired and my arms and legs just felt heavy. But then I started noticing that they were weak too--it was hard to lift my legs into my jeans, it was becoming harder and harder to lift dishes into the cupboard. Then my muscles began to degenerate in …

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So what is dermatomyositis?

Well if you look it up, which I have done only very very briefly, you will encounter all sorts of horrific pictures and prognostications. But as with anything the actual personal experience is quite different to what one finds on the internet. Basically it's an extremely rare autoimmune disorder affecting only a few hundred thousand …

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