New About Me

Feeling so good I think it’s time for a new About Me page! So… I had a hideously tough year in 2018. I spent about two months thinking I had muscular dystrophy and was dying, but it turned out I only had the super-rare autoimmune disorder dermatomyositis, which still sucked a lot. Basically my immune system […]

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New Year!

The holidays came and went very quickly and were rather strange and somewhat intense, for a variety of reasons I might not get into, but also quite festive. I spent a few of the holiday days not following the AIP at all and it was was fun to remember what bread, cheese, and excessive amounts […]

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Feeling betterish

So two months into the prednisone and I’ve built up enough muscle that a lot of things are finally starting to feel almost normal, like showering and washing dishes and walking to the beach. Which is great! It’s really and truly a wonderful feeling to be able to lift things without strain (not the cat […]

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Life without caffeine

I’ve just reached my first month without caffeine! There appears to be a lot of debate on whether caffeine (and coffee in particular) reduces or increases inflammation. As far as the AIP is concerned coffee is out, at least at first, due to being a seed, but tea (being a leaf) is allowed if you […]

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60mgs of steroids a day

Feels a lot less interesting than I thought it might. The pharmacist said this is the “highest dose of prednisone that leaves you in the wakey talky world”, but I honestly haven’t felt much from it at all except a continuing decrease in my autoimmune symptoms, which is absolutely fantastic. The first few days I […]

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Legs feeling better…

Such  relief to wake up this morning with almost no tightness or strange streaming sensation in the muscles in the tops of my thighs. Wouldn’t it be nice if the prednisone were really working and changes were happening? Some concern that it has to do with supplements that I started taking again because they brought […]

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