Just got my results back!

Drumroll... Yes I have dermatomyositis! Only someone else who also spent several months thinking they had muscular dystrophy can appreciate just how exciting that is. When I first went to the specialist he almost immediately thought it was dermatomyositis because he could see the redness on my hands that I had hardly noticed, and he …

Continue reading Just got my results back!

What does dermatomyositis feel like?

Horrible. It started pretty simply, I felt physically tired and my arms and legs just felt heavy. But then I started noticing that they were weak too--it was hard to lift my legs into my jeans, it was becoming harder and harder to lift dishes into the cupboard. Then my muscles began to degenerate in …

Continue reading What does dermatomyositis feel like?

So what is dermatomyositis?

Well if you look it up, which I have done only very very briefly, you will encounter all sorts of horrific pictures and prognostications. But as with anything the actual personal experience is quite different to what one finds on the internet. Basically it's an extremely rare autoimmune disorder affecting only a few hundred thousand …

Continue reading So what is dermatomyositis?