I haven't been posting much on here lately because now that I am basically a strong, functional, "normal" (whatever that means) person, it feels odd to spew nonsense about the random things I'm cooking and doing into the cyberspace void. I'm not sure why it feels like that's more acceptable if you've got something wrong …
Tag: prednisone
Seeing friends
I've been really lucky the last couple weeks in having two of my best friends come to visit me. I was afraid that I'd be super grumpy and tired and not remember how to socialize, but I'm down to 15mgs of prednisone and the grumpy tiredness was minimal. After a while I felt like I …
New About Me
Feeling so good I think it's time for a new About Me page! So... I had a hideously tough year in 2018. I spent about two months thinking I had muscular dystrophy and was dying, but it turned out I only had the super-rare autoimmune disorder dermatomyositis, which still sucked a lot. Basically my immune system …
New Year!
The holidays came and went very quickly and were rather strange and somewhat intense, for a variety of reasons I might not get into, but also quite festive. I spent a few of the holiday days not following the AIP at all and it was was fun to remember what bread, cheese, and excessive amounts …
Getting out and about
After some three to four months of not leaving the house alone (and really hardly leaving the house at all) I finally feel functional enough to go out alone on some minor errands and adventures. I can finally get in and out of my own low-to-the-ground car, so yesterday I took River (my car) to …
Seeing the doctor, picking up the cats
Haven't written anything for a bit because I took a trip to Iowa to see the doctor and ended up quite pleasantly distracted. Also tried caffeine again for the first time in two months and it made me feel surreally exhausted for the duration of the trip and not like writing. As it turns out …
Feeling betterish
So two months into the prednisone and I've built up enough muscle that a lot of things are finally starting to feel almost normal, like showering and washing dishes and walking to the beach. Which is great! It's really and truly a wonderful feeling to be able to lift things without strain (not the cat …
60mgs of steroids a day
Feels a lot less interesting than I thought it might. The pharmacist said this is the "highest dose of prednisone that leaves you in the wakey talky world", but I honestly haven't felt much from it at all except a continuing decrease in my autoimmune symptoms, which is absolutely fantastic. The first few days I …
Getting a muscle biopsy
One of the more surreal episodes in this strange adventure was going to the hospital in Iowa City to get a muscle biopsy. This turned out to take place in a full, television-style operating room in the neurosurgery department no less! We were there for 11 hours. I'd read online that a muscle biopsy was …
Legs feeling better…
Such relief to wake up this morning with almost no tightness or strange streaming sensation in the muscles in the tops of my thighs. Wouldn't it be nice if the prednisone were really working and changes were happening? Some concern that it has to do with supplements that I started taking again because they brought …
