Things dermatomyositis has made hard

This has been absolutely excruciating. I know there are more painful autoimmune disorders out there (this has not been painful at all really) but it's really impossible to convey just how awful it is to experience your body getting weaker and weaker, your muscles smaller and smaller, and your capabilities less and less, and be …

Continue reading Things dermatomyositis has made hard

I took my stitches out myself

What a strange but oddly satisfying experience to cut and then to pull little plastic strings out from under your skin... I'm glad they are gone: they were bunching up the skin strangely and it's nice to more comfortably lie on my left side again. Cocoa butter to smooth out any scarring! Soon will forget …

Continue reading I took my stitches out myself

What does dermatomyositis feel like?

Horrible. It started pretty simply, I felt physically tired and my arms and legs just felt heavy. But then I started noticing that they were weak too--it was hard to lift my legs into my jeans, it was becoming harder and harder to lift dishes into the cupboard. Then my muscles began to degenerate in …

Continue reading What does dermatomyositis feel like?