Haven't written anything for a bit because I took a trip to Iowa to see the doctor and ended up quite pleasantly distracted. Also tried caffeine again for the first time in two months and it made me feel surreally exhausted for the duration of the trip and not like writing. As it turns out …
Tag: diagnosis
The really awful MD scare
So, as I've alluded to a couple of times, I actually spent about two months this summer genuinely thinking I had muscular dystrophy and was dying, which was, as you might have guessed, pretty shitty. Why did I think this? Two reasons. The first is that that's exactly what it felt like. The second was …
Getting a muscle biopsy
One of the more surreal episodes in this strange adventure was going to the hospital in Iowa City to get a muscle biopsy. This turned out to take place in a full, television-style operating room in the neurosurgery department no less! We were there for 11 hours. I'd read online that a muscle biopsy was …
Why do I have this awful thing?
I've certainly been asking myself this question but the strange thing is I have a weirdly plausible answer. I'm doing what limited research I can, but the specialist I've been seeing is also looking into it and he should have much better luck. I got these candida injections, six of them (three in my toe …
Just got my results back!
Drumroll... Yes I have dermatomyositis! Only someone else who also spent several months thinking they had muscular dystrophy can appreciate just how exciting that is. When I first went to the specialist he almost immediately thought it was dermatomyositis because he could see the redness on my hands that I had hardly noticed, and he …
Old About Me
So my life recently took a very strange turn... From being nomadic and fiercely-independent I've suddenly been faced with a severe autoimmune disorder and loss of muscle so extreme I need help climbing stairs. Before I get back into the swing of regular life I need to do some major healing, so this blog will …
