New About Me

Feeling so good I think it’s time for a new About Me page! So… I had a hideously tough year in 2018. I spent about two months thinking I had muscular dystrophy and was dying, but it turned out I only had the super-rare autoimmune disorder dermatomyositis, which still sucked a lot. Basically my immune system […]

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New Year!

The holidays came and went very quickly and were rather strange and somewhat intense, for a variety of reasons I might not get into, but also quite festive. I spent a few of the holiday days not following the AIP at all and it was was fun to remember what bread, cheese, and excessive amounts […]

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Getting out and about

After some three to four months of not leaving the house alone (and really hardly leaving the house at all) I finally feel functional enough to go out alone on some minor errands and adventures. I can finally get in and out of my own low-to-the-ground car, so yesterday I took River (my car) to […]

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Feeling betterish

So two months into the prednisone and I’ve built up enough muscle that a lot of things are finally starting to feel almost normal, like showering and washing dishes and walking to the beach. Which is great! It’s really and truly a wonderful feeling to be able to lift things without strain (not the cat […]

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Being zen and feeling better

I’m amazed at what a patient person I’ve actually turned out to be. I’ve always felt quite impatient when I couldn’t do something easily, or had to learn something new that took a while; I like doing things that can be done quickly and I like learning things that can be learned quickly. This whole […]

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The really awful MD scare

So, as I’ve alluded to a couple of times, I actually spent about two months this summer genuinely thinking I had muscular dystrophy and was dying, which was, as you might have guessed, pretty shitty. Why did I think this? Two reasons. The first is that that’s exactly what it felt like. The second was […]

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Getting a muscle biopsy

One of the more surreal episodes in this strange adventure was going to the hospital in Iowa City to get a muscle biopsy. This turned  out to take place in a full, television-style operating room in the neurosurgery department no less! We were there for 11 hours. I’d read online that a muscle biopsy was […]

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Why do I have this awful thing?

I’ve certainly been asking myself this question but the strange thing is I have a weirdly plausible answer. I’m doing what limited research I can, but the specialist I’ve been seeing is also looking into it and he should have much better luck. I got these candida injections, six of them (three in my toe […]

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