Feeling so good I think it’s time for a new About Me page! So… I had a hideously tough year in 2018. I spent about two months thinking I had muscular dystrophy and was dying, but it turned out I only had the super-rare autoimmune disorder dermatomyositis, which still sucked a lot. Basically my immune system […]Read More New About Me
The holidays came and went very quickly and were rather strange and somewhat intense, for a variety of reasons I might not get into, but also quite festive. I spent a few of the holiday days not following the AIP at all and it was was fun to remember what bread, cheese, and excessive amounts […]Read More New Year!
After some three to four months of not leaving the house alone (and really hardly leaving the house at all) I finally feel functional enough to go out alone on some minor errands and adventures. I can finally get in and out of my own low-to-the-ground car, so yesterday I took River (my car) to […]Read More Getting out and about
Haven’t written anything for a bit because I took a trip to Iowa to see the doctor and ended up quite pleasantly distracted. Also tried caffeine again for the first time in two months and it made me feel surreally exhausted for the duration of the trip and not like writing. As it turns out […]Read More Seeing the doctor, picking up the cats
So two months into the prednisone and I’ve built up enough muscle that a lot of things are finally starting to feel almost normal, like showering and washing dishes and walking to the beach. Which is great! It’s really and truly a wonderful feeling to be able to lift things without strain (not the cat […]Read More Feeling betterish
Just came across this account of three months spent bartending in the outback of Western Australia last year and thought it might make a fun post. A little context: I spent much of 2016-2017 living in Melbourne, Australia, on a working holiday visa. In order to extend this visa for a second year American applicants […]Read More Three months working in the outback
I’m amazed at what a patient person I’ve actually turned out to be. I’ve always felt quite impatient when I couldn’t do something easily, or had to learn something new that took a while; I like doing things that can be done quickly and I like learning things that can be learned quickly. This whole […]Read More Being zen and feeling better
So, as I’ve alluded to a couple of times, I actually spent about two months this summer genuinely thinking I had muscular dystrophy and was dying, which was, as you might have guessed, pretty shitty. Why did I think this? Two reasons. The first is that that’s exactly what it felt like. The second was […]Read More The really awful MD scare
One of the more surreal episodes in this strange adventure was going to the hospital in Iowa City to get a muscle biopsy. This turned out to take place in a full, television-style operating room in the neurosurgery department no less! We were there for 11 hours. I’d read online that a muscle biopsy was […]Read More Getting a muscle biopsy
I’ve certainly been asking myself this question but the strange thing is I have a weirdly plausible answer. I’m doing what limited research I can, but the specialist I’ve been seeing is also looking into it and he should have much better luck. I got these candida injections, six of them (three in my toe […]Read More Why do I have this awful thing?