Getting a muscle biopsy

One of the more surreal episodes in this strange adventure was going to the hospital in Iowa City to get a muscle biopsy. This turned  out to take place in a full, television-style operating room in the neurosurgery department no less! We were there for 11 hours. I’d read online that a muscle biopsy was […]

Read More Getting a muscle biopsy

I took my stitches out myself

What a strange but oddly satisfying experience to cut and then to pull little plastic strings out from under your skin… I’m glad they are gone: they were bunching up the skin strangely and it’s nice to more comfortably lie on my left side again. Cocoa butter to smooth out any scarring! Soon will forget […]

Read More I took my stitches out myself

Just got my results back!

Drumroll… Yes I have dermatomyositis! Only someone else who also spent several months thinking they had muscular dystrophy can appreciate just how exciting that is. When I first went to the specialist he almost immediately thought it was dermatomyositis because he could see the redness on my hands that I had hardly noticed, and he […]

Read More Just got my results back!