Feeling so good I think it’s time for a new About Me page! So… I had a hideously tough year in 2018. I spent about two months thinking I had muscular dystrophy and was dying, but it turned out I only had the super-rare autoimmune disorder dermatomyositis, which still sucked a lot. Basically my immune system […]Read More New About Me
After some three to four months of not leaving the house alone (and really hardly leaving the house at all) I finally feel functional enough to go out alone on some minor errands and adventures. I can finally get in and out of my own low-to-the-ground car, so yesterday I took River (my car) to […]Read More Getting out and about
On Friday I made my fiftieth post and also got my fiftieth follower! This post makes 51, with 52 followers. It’s been fun and diverting having this blog to work on and I’m glad people are also enjoying reading it–thanks for following along with me! In other news I’ve been exercising and getting a lot stronger […]Read More 50 posts and The Paleo Approach
Turning your immune system off is a shitty thing to have to do. Apparently with no immune system not only are you more susceptible to all the nasties floating around out there (maybe it’s just as well that I basically don’t leave the house) but things that have passively sat inside you without bothering you […]Read More Shingles too? Really?
Haven’t written anything for a bit because I took a trip to Iowa to see the doctor and ended up quite pleasantly distracted. Also tried caffeine again for the first time in two months and it made me feel surreally exhausted for the duration of the trip and not like writing. As it turns out […]Read More Seeing the doctor, picking up the cats
So two months into the prednisone and I’ve built up enough muscle that a lot of things are finally starting to feel almost normal, like showering and washing dishes and walking to the beach. Which is great! It’s really and truly a wonderful feeling to be able to lift things without strain (not the cat […]Read More Feeling betterish
As I was first starting the Paleo Autoimmune Protocol I found the food pyramid below to be a helpful visual reminder of just what I’m supposed to be eating. (Curtesy of A Simple Guide to the Paleo Autoimmune Protocol, by Eileen Laird, a nice basic starting guide to the AIP.) In a nutshell I would say […]Read More What does it mean to completely follow the AIP?
I’m amazed at what a patient person I’ve actually turned out to be. I’ve always felt quite impatient when I couldn’t do something easily, or had to learn something new that took a while; I like doing things that can be done quickly and I like learning things that can be learned quickly. This whole […]Read More Being zen and feeling better
I’ve just reached my first month without caffeine! There appears to be a lot of debate on whether caffeine (and coffee in particular) reduces or increases inflammation. As far as the AIP is concerned coffee is out, at least at first, due to being a seed, but tea (being a leaf) is allowed if you […]Read More Life without caffeine
Feels a lot less interesting than I thought it might. The pharmacist said this is the “highest dose of prednisone that leaves you in the wakey talky world”, but I honestly haven’t felt much from it at all except a continuing decrease in my autoimmune symptoms, which is absolutely fantastic. The first few days I […]Read More 60mgs of steroids a day