Seasons!

Took a brief trip to Iowa and got to see both a beautiful fall and a brief lovely taste of winter, and then run back to 80 degree Florida. Doctor visit was pretty worthless, he basically said yeah I don’t know what to tell you anymore there’s no data for this at all whatsoever… You […]

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New About Me

Feeling so good I think it’s time for a new About Me page! So… I had a hideously tough year in 2018. I spent about two months thinking I had muscular dystrophy and was dying, but it turned out I only had the super-rare autoimmune disorder dermatomyositis, which still sucked a lot. Basically my immune system […]

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New Year!

The holidays came and went very quickly and were rather strange and somewhat intense, for a variety of reasons I might not get into, but also quite festive. I spent a few of the holiday days not following the AIP at all and it was was fun to remember what bread, cheese, and excessive amounts […]

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Getting out and about

After some three to four months of not leaving the house alone (and really hardly leaving the house at all) I finally feel functional enough to go out alone on some minor errands and adventures. I can finally get in and out of my own low-to-the-ground car, so yesterday I took River (my car) to […]

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Shingles too? Really?

Turning your immune system off is a shitty thing to have to do. Apparently with no immune system not only are you more susceptible to all the nasties floating around out there (maybe it’s just as well that I basically don’t leave the house) but things that have passively sat inside you without bothering you […]

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Feeling betterish

So two months into the prednisone and I’ve built up enough muscle that a lot of things are finally starting to feel almost normal, like showering and washing dishes and walking to the beach. Which is great! It’s really and truly a wonderful feeling to be able to lift things without strain (not the cat […]

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Being zen and feeling better

I’m amazed at what a patient person I’ve actually turned out to be. I’ve always felt quite impatient when I couldn’t do something easily, or had to learn something new that took a while; I like doing things that can be done quickly and I like learning things that can be learned quickly. This whole […]

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60mgs of steroids a day

Feels a lot less interesting than I thought it might. The pharmacist said this is the “highest dose of prednisone that leaves you in the wakey talky world”, but I honestly haven’t felt much from it at all except a continuing decrease in my autoimmune symptoms, which is absolutely fantastic. The first few days I […]

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The really awful MD scare

So, as I’ve alluded to a couple of times, I actually spent about two months this summer genuinely thinking I had muscular dystrophy and was dying, which was, as you might have guessed, pretty shitty. Why did I think this? Two reasons. The first is that that’s exactly what it felt like. The second was […]

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